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FH paediatric screening program gets national visibility and importance as part of cardiovascular heart health agenda in Germany and across Europe. VRONI is a screening program for Familial Hypercholesterolemia (FH) and was successfully launched in 2021 as part of the DigiMed project in Bavaria, Germany. In the context of any pediatric check-up, children aged 5 […]

On April 18th we celebrate the European Patients’ Rights Day. The annual recurrence celebrates patients’ and civil society organisations in their efforts to advance patients’ rights at the global and European level. The European Patients’ Rights Day was created by the Active Citizenship Network to inform, discuss, and take commitments to improve patients’ rights in […]

  We are very happy to bring your to attention an upcoming webinar organised by Action FCS, the newest member of our network. The webinar will focus on FCS in children and will take place on Wednesday, 26 April 2023, from 7 pm to 8 pm BST (8 pm to 9 pm CET). To register, […]

Read the March 2023 edition of FH Europe’s Heart Beat newsletter to stay up to date with the latest news and events: A day to advocate for patients and raise awareness of the dangers of elevated Lp(a) FH Europe continues to advocate for FH paediatric screening under the Swedish EU presidency Patient Ambassadors will assist […]

Today is the Lp(a) Awareness Day! Lipoprotein(a) Awareness Day is an event for raising global awareness of elevated Lipoprotein(a), also known as Lp(a). This important event was held on March 24 when supporters use the power of their voices to spread the word about Lp(a) and the importance of testing. The focus is on media […]

In the February 2023 edition of FH Europe’s Heart Beat newsletter you’ll find news of the following:  Joint health checks for CVD and diabetes will save lives Event report: 2023 Europe Rare Disease Summit Sharing experience to build multi-stakeholder alliances against ASCVD Participate in an FCS survey about patient lived experience and help others FH […]