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We are delighted to announce that Jill Prawer will join the FH Europe effective Feb 28, 2023, as Rare Diseases Project Manager. In her role Jill will be responsible for patient advocacy and patient support projects focusing on rare familial lipid conditions – HoFH and FCS. Jill brings unique experience and expertise to FH Europe. […]

Cardiovascular diseases (CVD) and diabetes rank among the top causes of preventable and premature deaths in Europe. Currently between 20 and 40% of heart attacks occur in people previously undiagnosed with cardiovascular disease and over 1 in 3 adults live with undiagnosed diabetes. One third of people living with diabetes develop CVD, which is why […]

With Rare Disease Day coming up, FH Europe was present at the Europe Rare Disease Summit in Madrid, Spain. The event was hosted by Bamberg Health, held in a hybrid format on 15 February 2023! The objective of the Summit was to discuss the key trends and topics relating to diagnostics and treatments for rare […]

Following our first webinar dedicated to Familial Chylomicronaemia Syndrome, or FCS in short (you can watch it here), we are pleased to share some information about ongoing research about lived experiences of people living with FCS and severe hypertriglyceridemia (SHTG). As the Rare Disease Day is fast approaching, we wish to bring your attention to […]

Atherosclerotic cardiovascular disease (ASCVD) accounts for 85% of all cardiovascular-related deaths. A major risk factor for ASCVD is low-density lipoprotein (LDL-C) also known as ‘bad cholesterol’. It is estimated that 2 billion people globally are at risk of developing health issues as a result of unhealthy cholesterol levels. Today, it is said that 300 million […]

In the January 2023 edition of FH Europe’s Heart Beat newsletter you’ll find news of the following: Chief Executive’s message for 2023 The legacy of the Czech EU Presidency Our 31th network memeber – Action FCS joins the network Event report: First webinar dedicated to FCS Rare disease Day coming up Living with HoFH – […]