Heart Beat News – January 2023

Jan 31, 2023

In the January 2023 edition of FH Europe’s Heart Beat newsletter you’ll find news of the following:

  • Chief Executive’s message for 2023
  • The legacy of the Czech EU Presidency
  • Our 31th network memeber – Action FCS joins the network
  • Event report: First webinar dedicated to FCS
  • Rare disease Day coming up
  • Living with HoFH – a rare disease Patient Story in French
  • The expansion of Diagnoza FH that will now be known as the Czech Alliance for Cardiovascular Diseases (CAKO)
  • An active beginning of the year of SZÍVSN Heartily Hungary
  • Advancing a Prevention Agenda for Cardiovascular Care in Ireland
  • Launch of the Heart Failure (HF) Patient & Caregiver Charter in Poland
  • Polish Government Launches National Cardiovascular Health Plan
  • Launch of an E-learning event planning tool for under-resourced associations from EURORDIS
  • Watch the recording of the Empower Webinar – How Patients Can Advocate for Themselves with Clinicians
  • The Global Heart Hub Cholesterol Action Plan: Building successful alliances
  • Amryt Pharma to be acquired by Chiesi Farmaceutici S.P.A
  • All the events you shouldn’t miss

Subscribe to receive the monthly Heart Beat newsletter here

FH Europe is registered as a charity; Charity number 1170731, registered in England and Wales.

FH Europe is registered as a charity; Charity number 1170731, registered in England and Wales.

FH Europe is supported by an educational grant from Amgen Limited, Sanofi, Regeneron, Akcea Therapeutics Inc. and Amryt
Site by: Vovi Web Design