FH Europe News

Marking Rare Disease Day 2021, the Eurordis Black Pearl annual awards event will take place on the 24th February to recognise the outstanding achievements and celebrate the exceptional work of people making a difference for the rare disease community. The black pearl...

We are delighted to welcome our new Chair, Giovanni Nisato. Giovanni is passionate about health, sustainability, and human-centric innovation. He holds a PhD in physics and gathered 20 years of international experience working at NIST (US), Philips Research (NL), CSEM...

A message from Jules Payne, Chair of FH Europe, and CEO of HEART UK “The time has now come for me to step down as Chair of FH Europe, a role I have been so very proud to fulfil these past four years.  I would like to thank all fellow Trustees, past and present in...

Join us for a community webinar Ever wondered what a #registry was? Curious to find out how FH registry can impact you and your family? #FamilialHypercholesterolemla (FH) is one of the most common and life-threatening inherited conditions. If you have FH, at least...

The highlight on the FH Europe patients’ community’s agenda is the annual meeting. Since the creation of the Network, the leaders of the respective patient organizations have been coming together face to face to share, exchange and to network. In 2020, in...