FH Europe News

Heart Beat News – January 2023

Heart Beat News – January 2023

In the January 2023 edition of FH Europe’s Heart Beat newsletter you’ll find news of the following: Chief Executive’s message for 2023 The legacy of the Czech EU Presidency Our 31th network memeber - Action FCS joins the network Event report: First webinar dedicated...

One month to Rare Disease Day

One month to Rare Disease Day

With Rare Disease Day 2023 taking place on 28 February and nearly one month away, we outline some of the key activities and events that our rare disease advocates and the international community can participate in to show our support! Since its launch, Rare Disease...

The legacy of the Czech EU Presidency

The legacy of the Czech EU Presidency

We are thrilled to share that an official letter regarding FH Paediatric Screening and endorsing the Prague Declaration was sent to the Swedish Minister for Health Care, signed by the Czech Deputy Prime Minister and Minister of Health, Mr. Vlastimi VÁLEK. In the...

First webinar dedicated to FCS

First webinar dedicated to FCS

Can you imagine living on no more than 20 grams of fat a day? This is the reality for people living with Familial Chylomicronaemia Syndrome (FCS), as it represents a crucial way for managing their disease and symptoms. On 19 January 2023, FH Europe, in partnership...

Action FCS joins the Network

Action FCS joins the Network

Welcome to the new member of the Network, Action FCS from the UK, who support and advocate for people with familial chylomicronaemia syndrome (FCS). As we kick off the new year with a long awaited webinar on FCS, we have some exciting news to share. After a very...

FH Europe is registered as a charity; Charity number 1170731, registered in England and Wales.

FH Europe is registered as a charity; Charity number 1170731, registered in England and Wales.

FH Europe is supported by an educational grant from Amgen Limited, Sanofi, Regeneron, Akcea Therapeutics Inc. and Amryt
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