Heart Beat News – May 2023
Read the May 2023 edition of FH Europe’s Heart Beat newsletter to stay up to date with the latest news and events:
- HoFH Patient Ambassadors advocate at the WHF Rare CVDs Forum.
- EAS Annual Congress follow-up webinars.
- Biggest patient organization celebrates their 20th anniversary.
- Story of a young man, husband and a father with Lp(a)
- This year’s Update on European Atherosclerosis Society Consensus Statement on Homozygous Familial Hypercholesterolaemia.
- World Heart Federation policy brief.
- FHChol Austria FH patient contributes to discussions on AI and raises awareness about Lp(a).
- Bulgarian Patients Forum Federation raises FH awareness among children.
- CAKO partners with the Czech Society of Cardiology at the largest Czech cardiology congress.
- SZÍVSN Heartily Hungary shares exciting updates and achievements.
- Croí Ireland research: The Invisible Nation – Spotlight on Cholesterol.
- Link to the FH Sweden’s The Cholesterol Podcast.
- Turkish National Data reveals alarming FH prevalence in Türkiye.
- Action FCS hosts their first webinar on Children and FCS.
- Global Heart Hub’s International Heart Failure Awareness Campaign.
- EURORDIS survey on newborn screening for rare diseases.
- Importance of genetic testing in FH.
- Lesson on orphan drugs for rare diseases for FH Europe ambassadors.
- Upcoming events you shouldn’t miss.
FH Europe is registered as a charity; Charity number 1170731, registered in England and Wales.
FH Europe is registered as a charity; Charity number 1170731, registered in England and Wales.
FH Europe is supported by an educational grant from Amgen Limited, Sanofi, Regeneron, Akcea Therapeutics Inc. and Amryt
Site by: Vovi Web Design