Network Organisations

The European FH Patient Network actively working to improve Europe-wide awareness, understanding, and access to diagnosis and treatment of inherited lipid conditions, (specifically FH, HoFH, Lp(a), FCS), so that all those impacted receive optimal treatment and support, resulting in longer and healthier lives

Countries

The European FH Patient Network actively working to improve Europe-wide awareness, understanding, and access to diagnosis and treatment of inherited lipid conditions, (specifically FH, HoFH, Lp(a), FCS), so that all those impacted receive optimal treatment and support, resulting in longer and healthier lives

Network Organisations

Countries

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who we are

FH Europe consists of multiple FH patient groups across Europe. By sharing information & best practice we aim to secure early identification and diagnosis.

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about fh

Familial Hypercholesterolaemia (FH) is an inherited genetic condition that leads to levels of cholesterol that are much higher than that of the general population.

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Our NETWORK

The network is made up of organisations and individuals that represent FH patient groups within their specific European country.

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Latest News

International HoFH community advocates at the WHF Rare CVDs Forum

International HoFH community advocates at the WHF Rare CVDs Forum

May 19, 2023

An international community of multidisciplinary stakeholders committed to making lives of people with rare cardiovascular diseases “longer and better” came together at the Rare Cardiovascular Diseases Forum (CVDs). FH Europe together with the HoFH community was...

EPF Celebrates 20 years of Patient Advocacy!

EPF Celebrates 20 years of Patient Advocacy!

May 15, 2023

Wow, what a day!  On 28th April FH Europe attended the 20th anniversary event for EPF (The European Patient’s Forum). The day focused on EPF past, present and future, asking attendees challenging and thought provoking questions through a series of workshops around...

FH Europe is registered as a charity; Charity number 1170731, registered in England and Wales.

FH Europe is registered as a charity; Charity number 1170731, registered in England and Wales.

FH Europe is supported by an educational grant from Amgen Limited, Sanofi, Regeneron, Akcea Therapeutics Inc. and Amryt
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