Network Organisations

The European FH Patient Network actively working to improve Europe-wide awareness, understanding, and access to diagnosis and treatment of inherited lipid conditions, (specifically FH, HoFH, Lp(a), FCS), so that all those impacted receive optimal treatment and support, resulting in longer and healthier lives

Countries

The European FH Patient Network actively working to improve Europe-wide awareness, understanding, and access to diagnosis and treatment of inherited lipid conditions, (specifically FH, HoFH, Lp(a), FCS), so that all those impacted receive optimal treatment and support, resulting in longer and healthier lives

Network Organisations

Countries

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who we are

FH Europe consists of multiple FH patient groups across Europe. By sharing information & best practice we aim to secure early identification and diagnosis.

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about fh

Familial Hypercholesterolaemia (FH) is an inherited genetic condition that leads to levels of cholesterol that are much higher than that of the general population.

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Our NETWORK

The network is made up of organisations and individuals that represent FH patient groups within their specific European country.

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Latest News

Heart Beat News – January 2023

Heart Beat News – January 2023

Jan 31, 2023

In the January 2023 edition of FH Europe’s Heart Beat newsletter you’ll find news of the following: Chief Executive’s message for 2023 The legacy of the Czech EU Presidency Our 31th network memeber - Action FCS joins the network Event report: First webinar dedicated...

One month to Rare Disease Day

One month to Rare Disease Day

Jan 28, 2023

With Rare Disease Day 2023 taking place on 28 February and nearly one month away, we outline some of the key activities and events that our rare disease advocates and the international community can participate in to show our support! Since its launch, Rare Disease...

FH Europe is registered as a charity; Charity number 1170731, registered in England and Wales.

FH Europe is registered as a charity; Charity number 1170731, registered in England and Wales.

FH Europe is supported by an educational grant from Amgen Limited, Sanofi, Regeneron, Akcea Therapeutics Inc. and Amryt
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