Network Organisations

The European FH Patient Network actively working to improve Europe-wide awareness, understanding, and access to diagnosis and treatment of inherited lipid conditions, (specifically FH, HoFH, Lp(a), FCS), so that all those impacted receive optimal treatment and support, resulting in longer and healthier lives

Countries

The European FH Patient Network actively working to improve Europe-wide awareness, understanding, and access to diagnosis and treatment of inherited lipid conditions, (specifically FH, HoFH, Lp(a), FCS), so that all those impacted receive optimal treatment and support, resulting in longer and healthier lives

Network Organisations

Countries

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who we are

FH Europe consists of multiple FH patient groups across Europe. By sharing information & best practice we aim to secure early identification and diagnosis.

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about fh

Familial Hypercholesterolaemia (FH) is an inherited genetic condition that leads to levels of cholesterol that are much higher than that of the general population.

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Our NETWORK

The network is made up of organisations and individuals that represent FH patient groups within their specific European country.

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Latest News

Heart Beat News – February 2023

Heart Beat News – February 2023

Feb 26, 2023

In the February 2023 edition of FH Europe’s Heart Beat newsletter you’ll find news of the following:  Joint health checks for CVD and diabetes will save lives Event report: 2023 Europe Rare Disease Summit Sharing experience to build multi-stakeholder alliances against...

Jill Prawer joins as Rare Diseases Project Manager

Jill Prawer joins as Rare Diseases Project Manager

Feb 23, 2023

We are delighted to announce that Jill Prawer will join the FH Europe effective Feb 28, 2023, as Rare Diseases Project Manager. In her role Jill will be responsible for patient advocacy and patient support projects focusing on rare familial lipid conditions - HoFH and...

FH Europe is registered as a charity; Charity number 1170731, registered in England and Wales.

FH Europe is registered as a charity; Charity number 1170731, registered in England and Wales.

FH Europe is supported by an educational grant from Amgen Limited, Sanofi, Regeneron, Akcea Therapeutics Inc. and Amryt
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