Heart Beat News – March 2023
Read the March 2023 edition of FH Europe’s Heart Beat newsletter to stay up to date with the latest news and events:
- A day to advocate for patients and raise awareness of the dangers of elevated Lp(a)
- FH Europe continues to advocate for FH paediatric screening under the Swedish EU presidency
- Patient Ambassadors will assist in training nurses on how to care for FH and Lp(a) patients
- An advocacy roadshow is underway
- ČAKO forges a new partnership with the Czech Society of Cardiology
- A screening campaign is the highlight of another busy month for SZÍVSN Heartily Hungary
- A position paper identifies FH as a gaping hole in Ireland’s efforts to CVD prevention and treatment
- Norway’s FH Norge celebrates 10,000th patient diagnosed through genetic testing
- In Spain, Fundación Hipercolesterolemia Familiar marks 25 years of operation
- Easter is coming – can you eat eggs?
- Is genetic testing for familial hypercholesterolemia for everyone?
- Bempedoic acid is a promising new treatment for patients with statin intolerance
- World Heart Summit will host a dedicated forum on rare heart diseases
- Take a survey to influence EPF’s position on using AI in healthcare
- EURORDIS is offering fellowships for Ambassadors looking to advance their skills
- All the events you shouldn’t miss
FH Europe is registered as a charity; Charity number 1170731, registered in England and Wales.
FH Europe is registered as a charity; Charity number 1170731, registered in England and Wales.
FH Europe is supported by an educational grant from Amgen Limited, Sanofi, Regeneron, Akcea Therapeutics Inc. and Amryt
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