Latest News

Heart Beat News – December 2021

Dec 22, 2021

In the December edition of FH Europe’s Heart Beat newsletter you’ll find the following: A special “End of Year” message from FH Europe’s Chair of the Board and Chief Executive. Information on how you can become a trustee of FH Europe, as we begin the search for new Patient Trustees. News of the renewed commitment […]

End of Year message

Dec 20, 2021

As the year draws to a close, we would like share with our community an End of Year message. Despite the uncertainties and the difficulties that 2021 has brought, FH Europe has had a very positive year. Although those have been very intense 12 months, the organization has made new alliances and delivered many impactful […]

A new EU health initiative “EU Roadmap on NCDs”

Dec 18, 2021

EACH issued a letter to the European Commission on behalf of its members including FH Europe, the European Atherosclerosis Society, the World Heart Federation and the Global Heart Hub among them to welcome a new EU health initiative. “EU Roadmap on NCDs” – the initiative was launched by the Commission to help Member States (MS) […]

UN General Assembly Adopts 1st Resolution on PLWRD

Dec 16, 2021

On December 16th 2021, the United Nations General Assembly has formally adopted the UN Resolution on Addressing the Challenges of Persons Living with a Rare Disease and their Families.  You can find the press release here This is the first ever UN text to give full visibility to the over 300 million Persons Living with […]

Heart Beat News – November 2021

Nov 25, 2021

Read the November edition of FH Europe’s Heart Beat newsletter: In this edition: Read our Patient Stories, highlighting our courageous network of patient advocates sharing their unique stories and experiences of living with FH, HoFH, Lp(a) and FCS. Find out about two new organisations in the FH network – The Israeli Heart Association and Lithuania’s […]

FHchol celebrates its 10th anniversary

Nov 20, 2021

On Friday, November 19th, FHchol’s members came together at an annual meeting and celebrated the organization’s 10th anniversary. It was a hybrid event, allowing the members to join online, or in person for the first time in a long time, and just before a new nationwide new lockdown. The reunion took place in Vienna, Austria. […]

FH Europe is registered as a charity; Charity number 1170731, registered in England and Wales.

FH Europe is registered as a charity; Charity number 1170731, registered in England and Wales.

FH Europe is supported by an educational grant from Amgen Limited, Sanofi, Akcea Therapeutics Inc. and Amryt