Heart Beat News – February 2023

Feb 26, 2023

In the February 2023 edition of FH Europe’s Heart Beat newsletter you’ll find news of the following:

  •  Joint health checks for CVD and diabetes will save lives
  • Event report: 2023 Europe Rare Disease Summit
  • Sharing experience to build multi-stakeholder alliances against ASCVD
  • Participate in an FCS survey about patient lived experience and help others
  • FH Europe welcomes Jill Prawer as Rare Disease Project Manager
  • Save the Date: 2023 FH Europe Annual Network Meeting
  • Take part in Lp(a) Awareness Day
  • Austrian webinar on familial hypercholesterolemia in children
  • Ahnet.f working on a white paper on FH in France
  • SZÍVSN Heartily Hungary’s events drive awareness and help patients
  • Spain’s Fundación Hipercolesterolemia Familiar celebrating 25th anniversary
  • WHF launched a working task force to create strategies for fighting rare cardiovascular diseases
  • A promising FCS treatment fast-tracked by FDA
  • EU funds a project studying how genetic information can be used for personalized medicine
  • All the events you shouldn’t miss

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FH Europe is registered as a charity; Charity number 1170731, registered in England and Wales.

FH Europe is registered as a charity; Charity number 1170731, registered in England and Wales.

FH Europe is supported by an educational grant from Amgen Limited, Sanofi, Regeneron, Akcea Therapeutics Inc. and Amryt
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