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Read the October edition of FH Europe’s Heart Beat newsletter: In this edition: Read our Patient Stories, highlighting our courageous network of patient advocates sharing their unique stories and experiences of living with FH, HoFH, Lp(a) and FCS. Learn about the major milestone meeting that took place this month regarding paediatric screening for FH in […]

Charity Trustee Role (Volunteer) Help us to save lives. FH Europe is a young, yet very successful, energetic and ambitious patient network. We represent 26 patient organisations across 25 European countries  and continue to grow. Our purpose is to improve Europe-wide awareness, understanding, and access to diagnosis and treatment of inherited lipid conditions, (specifically FH, […]

FH paediatric screening in the EU and the wider Europe is achievable, with the right political will, smart investment and genuine partnership that include patients and citizens as equal players. The overriding message from the high-level technical meeting on FH paediatric screening today was also “The time to act is now” – The topic has […]

The Time is Now: Cardiovascular Disease as an EU Priority: achieving FH paediatric screening across Europe Fewer victims, healthier lives, at lower cost Key points, context, facts and figures on a non-communicable disease that concerns 2.5 million people in wider Europe October 2021 Early-stage diagnosis and treatment of Familial Hypercholesterolemia, a genetic condition that causes […]

Rochester, UK, 27 September 2021: The European Alliance for Cardiovascular Health launches[1] today to raise awareness of the burden of cardiovascular disease (CVD) and call for action from European decision-makers. The announcement comes ahead of World Heart Day on 29 September. CVD is a group of conditions affecting the heart or blood vessels – they prominently […]

Read the September edition of FH Europe’s Heart Beat newsletter: In this edition: Read our Patient Stories, highlighting our courageous network of patient advocates sharing their unique stories and experiences of living with FH, HoFH, Lp(a) and FCS. Discover the activity taking place throughout September for FH Awareness day. Watch the special FH Awareness Day […]