FH Europe News

FCS and SHTG related research opportunity

FCS and SHTG related research opportunity

Following our first webinar dedicated to Familial Chylomicronaemia Syndrome, or FCS in short (you can watch it here), we are pleased to share some information about ongoing research about lived experiences of people living with FCS and severe hypertriglyceridemia...

Implementing change to tackle ASCVD

Implementing change to tackle ASCVD

Atherosclerotic cardiovascular disease (ASCVD) accounts for 85% of all cardiovascular-related deaths. A major risk factor for ASCVD is low-density lipoprotein (LDL-C) also known as ‘bad cholesterol’. It is estimated that 2 billion people globally are at risk of...

Heart Beat News – January 2023

Heart Beat News – January 2023

In the January 2023 edition of FH Europe’s Heart Beat newsletter you’ll find news of the following: Chief Executive’s message for 2023 The legacy of the Czech EU Presidency Our 31th network memeber - Action FCS joins the network Event report: First webinar dedicated...

One month to Rare Disease Day

One month to Rare Disease Day

With Rare Disease Day 2023 taking place on 28 February and nearly one month away, we outline some of the key activities and events that our rare disease advocates and the international community can participate in to show our support! Since its launch, Rare Disease...

The legacy of the Czech EU Presidency

The legacy of the Czech EU Presidency

We are thrilled to share that an official letter regarding FH Paediatric Screening and endorsing the Prague Declaration was sent to the Swedish Minister for Health Care, signed by the Czech Deputy Prime Minister and Minister of Health, Mr. Vlastimi VÁLEK. In the...

FH Europe is registered as a charity; Charity number 1170731, registered in England and Wales.

FH Europe is registered as a charity; Charity number 1170731, registered in England and Wales.

FH Europe is supported by an educational grant from Amgen Limited, Sanofi, Regeneron, Akcea Therapeutics Inc. and Amryt
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