Trustees Board

 
Jules Payne

Jules Payne

chair

Jules Payne is Chief Executive of HEART UK – The Cholesterol Charity.   Jules has been the driving force to firmly place cholesterol on the political agenda and for HEART UK to become the centre of expertise for cholesterol and all lipid conditions.  HEART UK now sits on many decision-making bodies including the FH Steering Group chaired by Prof. Huon Gray, National Clinical Lead for Cardiovascular Disease and the National Cardiovascular Intelligence Network which has led to the significant positioning of FH in policy.

Jules leads on developing the HEART UK Annual Conference which attracts a worldwide delegation as the ‘must go’ conference for anyone interested in lipids in primary and secondary care.

Jules was also instrumental in establishing a European network of support groups for patients with familial hypercholesterolaemia and chairs the FH Europe Committee with 23 member countries.

John Reeve

John Reeve

Treasurer

John Reeve spent 30 years as a management consultant with Deloitte and was a partner from 1986 until his retirement in 2010. He has held a variety of leadership roles and at the time of his retirement, was Head of Technology Consulting for the Europe, Middle East and Africa region. He has led substantial projects in the UK, Europe, North America, Middle East and the Far East.

John has a number of charitable interests, which include the Academy of Ancient Music, the Lute Society and Meketa, a charity which provides livelihood support to destitute families in Northern Ethiopia.

Gunnar Karlsson

Gunnar Karlsson

Trustee

Gunnar had been working in Information Technology for about 35 years, and mainly within Astra / Astra Zeneca. Over the years he was responsible for both local, Country level, and Global organisation.

During his career, Gunnar also spent 3 years abroad working for Astra Japan.

 

Inese Maurina

Inese Maurina

Trustee

Inese Maurina was a co-founder in 2011 of the Latvian FH patient organisation ParSirdi.lv which she now heads. Having originally qualified with a Masters in Social Sciences, she brings long-standing experience of public relations, journalism and patient advocacy to her role.

She is chief editor of the Latvian heart health magazine “Sirds un veseliba” (http://sirdsunveseliba.lv/lv/) and is a freelance writer for Latvia’s leading health magazine “levas veseliba” as well as having a PR agency ‘Be Proud’.

Samuel Gidding

Samuel Gidding

Trustee

Dr. Gidding has almost 40 years of experience as a pediatric preventive cardiologist.  His interest in FH dates back to medical school when Dr. Avedis Kachadurian was one of his professors and 1986, when he first learned about the LDL receptor discovery.  That same year, he began one of the first preventive Cardiology clinics for children in the United States. In 2009, he spoke at a symposium on pediatric FH in Vienna, where he learned of the great advances in care in Europe and the importance of FH Advocacy in raising awareness, improving care, and improving research.

Over the last decade, he has dedicated his career to research and advocacy related to FH, helping to introduce genetic testing in the US, supporting the National Lipid Association’s FH programs, founding PEDAL, a pediatric lipidology group in the USA, leading key scientific statements (the American Heart Association scientific statement on FH, the EAS statement on pediatric FH), supporting the FH Foundation in the USA (scientific advisory board, medical director for 18 months), participating in clinical trials, and participating in many scientific reviews and advocacy effort in the USA and worldwide, including being senior author on The Global Call to Action published in January of 2020.

Joanna Taylor

Joanna Taylor

Trustee

Joanna Taylor is a partner with Ernst & Young AG (EY) with a focus on Health Sciences and Wellness. She has spent more than 25 years living in Europe, Middle East, Africa and Asia and works with organizations to overcome the challenges of harnessing new and emerging technologies to create business value and have a positive impact on the lives of patients.

Joanna is an inclusive leader and ambassador for the advancement of women as well as an advocate for the development of future talent. She is a published researcher on social media narratives in non-communicable diseases, presents at international conferences and has tutored postgraduate courses on the Business of eHealth and Public Health Informatics.

Marius Geantă

Marius Geantă

Trustee

Marius Geantă is President and Co-Founder of the Center for Innovation in Medicine, a non-governmental organisation based in Bucharest, Romania, focused on innovation in the healthcare sector. The aim of the Center for Innovation in Medicine is to shorten the time between the emergence of innovations in the medical sector and their application so that they can benefit patients both in Romania and elsewhere.

In the context of Romanian Presidency of EU Council 2019, The Center for Innovation in Medicine proposed the vision paper “A new vision for cancer in Europe: data, technology and human touch” to be included in the EU Beating Cancer Plan.

Marius is a pioneer in the field of personalised medicine in Romania and Central Eastern Europe and is involved in some pan-European innovative healthcare projects, such as Information Technology: The Future of Cancer Treatment, DigiTwins Consortium, International Consortium for Personalised Medicine, Public Health Genomics Network, PECAN, Building Blocks for Personalised Medicine.

As President of the Centre for Innovation in Medicine, Marius is the coordinator of “State of Innovation in Medicine” Annual Report and the organiser of the high-level events Science meets Politicians (in partnership with Romanian Parliament) and Personalised Medicine Conference (two editions in partnership with Romanian Presidential Administration).

Dorota Zgodka

Dorota Zgodka

Trustee

Dorota Zgodka is bringing more than 25 years of Life Science experience in Biopharma industry, Strategic and Management Consulting, and Research and Science. Her multidisciplinary and cross-functional experience includes various leadership roles across the entire value chain, in drug development and commercialization in particular, with the emphasis on the strategy, planning and execution. Currently, in Healthcare Communications, she works with all entities of the Rare Diseases Community to increase the Rare Diseases awareness and education, by leveraging new technologies and innovative digital solutions – in addition to traditional channels – for the best of patients.

She is educated to the scientific PhD in drug development, combined with the education in business and finance. Worked and lived in Europe and the United States.

In her private time, she masters the mindfulness and her self-commitment to live a happy life and enjoys a time with her happy dog.

Giovanni Nisato

Giovanni Nisato

Trustee

Giovanni Nisato works as innovation and project management consultant at Innovation-Horizons, which he founded in 2019. He is passionate about health, sustainability and human-centric innovation. Giovanni holds a PhD in physics, and gathered 20 years of international experience working at NIST (US), Philips Research (NL), CSEM (CH) leading highly innovative R&D projects and consortia. He is one of the co-founders the Health Hacking Lab (https://www.healthhacklab.org/), a non-profit for patients, caregivers and innovators to co-create solutions that address everyday health challenges. Has a hobby, he sings with the Basel Chamber Voices, an a-capella choir.

Magdalena Daccord

Magdalena Daccord

Chief Executive and Secratariat to the Board

Magdalena Daccord was appointed as Chief Executive of FH Europe on Nov 1, 2019. She brings a strong cross functional healthcare experience from the non-profit organizations in drug development and regulatory, patient advocacy and pharmaceutical industry. In her last patient advocacy role, she focused on managing a multi-stakeholders project for new, personalized ways to develop and perform medical treatments for women’s brain and mental health, caregiving and prevention strategies together with novel technologies, considering of sex and gender differences.

In her spare time Magdalena is very active volunteering in the space of women empowerment and personal development.

FH Europe is registered as a charity; Charity number 1170731, registered in England and Wales.

FH Europe is registered as a charity; Charity number 1170731, registered in England and Wales.

FH Europe is supported by an educational grant from Amgen Limited, Sanofi, Regeneron, Akcea Therapeutics Inc. and Amryt
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