Latest News

The Global FH registry publication in the Lancet

Sep 8, 2021

Updated Dec 8th 2021 Global FHSC registry highlights the challenges of familial hypercholesterolaemia: late detection, undertreatment, and disparities between men and women. First data from the European Atherosclerosis Society (EAS) Familial Hypercholesterolaemia Studies Collaboration (FHSC) global registry of over 42,000 individuals from 56 countries, provides a unique snapshot into the worldwide burden and challenges of […]

Heart Beat News – August 2021

Aug 26, 2021

Read the August edition of FH Europe’s Heart Beat newsletter: In this edition: Read our Patient Stories, highlighting our courageous network of patient advocates sharing their unique stories and experiences of living with FH, HoFH, Lp(a) and FCS. FH Europe has redefined our vision and purpose to meet the needs of patients today and in […]

Paediatric screening and Technical Meeting

Aug 25, 2021

FH Europe is embarking on one of its biggest programmes yet – to ensure familial hypercholesterolaemia (FH) paediatric screening is made available, throughout the EU and wider Europe, to all who need and choose it. Together with renowned clinical experts in the field of FH, policy makers and patient advocates, FH Europe will co-organise a […]

We refine our vision and purpose 

Aug 23, 2021

FH Europe is committed to improving lives of families affected by inherited dyslipidaemias FH Europe is a non-profit organisation in the patient advocacy space, founded as a network of European patient organisations which share the same purpose. We face an environment of continuously unmet needs of patients and citizens with inherited dyslipidaemias, a heightened focus […]

HEART BEAT NEWS – JULY 2021

Jul 22, 2021

Read the July edition of FH Europe’s Heart Beat newsletter: In this edition: Watch the FH Roundtable discussion from EAS Congress: Next steps after the Global Call to Action on FH. Discover news from The Czech Republic about new alirocumab treatments available. Read an important publication from the American Journal of Preventive Cardiology on COVID-19 […]

FH Europe Heart Beat News – June 2021

Jun 24, 2021

Right from the start, June has been very busy and packed with important updates. This month, we announce a joint statement from 12 leading CVD organisations to the EU. As the European Atherosclerosis Society hosted its annual conference, we bring the latest about patient online events in local languages by our members, Harteraad – The Netherlands, FHChol – Austria and CholCo E.V – Germany. You can also learn more about HEART UK’s Medical & Scientific Virtual Conference 2021

FH Europe is registered as a charity; Charity number 1170731, registered in England and Wales.

FH Europe is registered as a charity; Charity number 1170731, registered in England and Wales.

FH Europe is supported by an educational grant from Amgen Limited, Sanofi, Akcea Therapeutics Inc. and Amryt