Latest News

Coronavirus, or COVID-19, has been declared a pandemic by the World Health Organisation. But what does this mean for those living with cholesterol or lipid conditions? In response to this unprecedented health crisis, FH Europe decided to host biweekly virtual meetings to connect, to share and to support the Network. As a result of the […]

Raising awareness of homozygous Familial Hypercholesterolaemia (HoFH) and Familial Chylomicronemia Syndrome (FCS) Saturday, 29 February, was the 13th edition of Rare Disease Day. The campaign continues to grow each year since it was first launched in 2008 by EURORDIS. Thousands of events were organised over 100 countries and regions to mark the occasion. The community […]

FH Europe, the European FH Patient Network, and the European Atherosclerosis Society (EAS) collaborate with global stakeholders to tackle the global burden of Familial Hypercholesterolaemia (FH) FH Europe and the EAS announced today the publication of a Global Call to Action on familial hypercholesterolemia (FH), a vastly under-recognized and poorly managed public health concern, in […]

We are pleased to announce that Magdalena Daccord has been appointed as our new Chief Executive. She officially started on Nov 1st 2019. Chair of the Board of Trustees, Jules Payne commented: “On behalf of myself and the Board of Trustees, we very much welcome Magdalena into the newly created role of Chief Executive. We […]

The October edition of the FH Europe e-Flash rounds up the latest news. In this edition: We mark the tragic death of a founding member of the network, Europe-wide awareness-raising for FH, World Heart Day 2019, All the latest news from around the network and News stories from across the world

It was with great sadness that we learnt on 22nd August of the sudden and unexpected death of Gabriele Hanauer-Mader. For all who knew Gaby as a warm, likeable, energetic woman who dedicated a great deal of her time to promoting the cause and treatment of individuals with Familial Hypercholesterolaemia the news has come as […]
FH Europe is supported by an educational grant from Amgen Limited, Sanofi, Akcea Therapeutics Inc. and Amryt