Latest News
FH Europe supports the latest EURORDIS Rare Barometer survey on the Journey to Diagnosis for People Living with a Rare Disease. We call upon all people living with HoFH and FCS, as well as their caregivers, in our community to participate in and to disseminate this research opportunity. It is an international project, available in […]
In the February edition of FH Europe’s Heart Beat newsletter you’ll find the following: News of the appointment of two new trustees to our board and a Senior Policy Manager within our team. Information about a webinar we are hosting on Rare Diseases Day (28th Feb) dedicated to Homozygous Familial Hypercholesteraemia (HoFH). A response to […]
Statement of Support As armed conflict erupts on Ukrainian territory, FH Europe, the European FH Patient Network, stands with the Ukrainian people. At the same time, we would like to extend support to the patients, individuals and their families affected with FH and other inherited lipid conditions on both sides of the conflict. Among them […]
In the February edition of FH Europe’s Heart Beat newsletter you’ll find the following: News of the appointment of two new trustees to our board and a Senior Policy Manager within our team. Information about a webinar we are hosting on Rare Diseases Day (28th Feb) dedicated to Homozygous Familial Hypercholesteraemia (HoFH). A response to […]
FH Europe is pleased to share the appointment of two new members to the Board of Trustees. Please join us in welcoming Annelies Dol from the Netherlands and Gergely Jambrik from Hungary who were appointed to the Board on 16th February 2022. The new Trustees bring to FH Europe invaluable experience as individuals and family […]
Like every year in February we look forward to celebrating the Rare Disease Day which always falls on the last day of the month. This year FH Europe will host a multi-perspective discussion dedicated to severe and rare form of inherited high cholesterol – the homozygous familial hypercholesterolaemia, in short HoFH. Together with international speakers, […]
FH Europe is registered as a charity; Charity number 1170731, registered in England and Wales.
FH Europe is registered as a charity; Charity number 1170731, registered in England and Wales.
FH Europe is supported by an educational grant from Amgen Limited, Sanofi, Akcea Therapeutics Inc. and Amryt