Heart Beat News – June 2022

Jun 30, 2022

In the June edition of FH Europe’s Heart Beat newsletter you’ll find the following:

  • News of our Chief Executive joining a list of stakeholders to contribute to events and initiatives run by The European Medicines Agency.
  • An update from Portugal that the Association of Portuguese Patients of Familial Hypercholesterolemia has published an article about FH in a national magazine.
  • Information on a series of FH-related sessions run by Hungary’s SZÍVSN.
  • A link to the replay of last month’s World Heart Summit.
  • Advance warning of the EURODIS CEF’s face-to-face meeting in Paris on 8-9 November.
  • A heads up about the EURODIS European Conference on Rare Disease and Orphan Products from 27 June – July.
  • News of a high level political event in Prague addressing barriers to FH paediatric screening implementation.
  • A link to the World Heart Day 2022 campaign toolkit.
  • A new initiative to reduce non communicable diseases (NCDs) across the EU, called Healthier Together.
  • Insights on the Spanish two-day symposium on FH and other inherited dyslipidaemias.
  • The opportunity to join a solidarity walk to raise awareness about HoFH and FCS in France.

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FH Europe is registered as a charity; Charity number 1170731, registered in England and Wales.

FH Europe is registered as a charity; Charity number 1170731, registered in England and Wales.

FH Europe is supported by an educational grant from Amgen Limited, Sanofi, Regeneron, Akcea Therapeutics Inc. and Amryt
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