Heart Beat News – May 2023

Read the May 2023 edition of FH Europe’s Heart Beat newsletter to stay up to date with the latest news and events:

• HoFH Patient Ambassadors advocate at the WHF Rare CVDs Forum.
• EAS Annual Congress follow-up webinars.
• Biggest patient organization celebrates their 20th anniversary.
• Story of a young man, husband and a father with Lp(a)
• This year’s Update on European Atherosclerosis Society Consensus Statement on Homozygous Familial Hypercholesterolaemia.
• World Heart Federation policy brief.
• FHChol Austria FH patient contributes to discussions on AI and raises awareness about Lp(a).
• Bulgarian Patients Forum Federation raises FH awareness among children.
• CAKO partners with the Czech Society of Cardiology at the largest Czech cardiology congress.
• SZÍVSN Heartily Hungary shares exciting updates and achievements.
• Croí Ireland research: The Invisible Nation – Spotlight on Cholesterol.
• Link to the FH Sweden’s The Cholesterol Podcast.
• Turkish National Data reveals alarming FH prevalence in Türkiye.
• Action FCS hosts their first webinar on Children and FCS.
• Global Heart Hub’s International Heart Failure Awareness Campaign.
• EURORDIS survey on newborn screening for rare diseases.
• Importance of genetic testing in FH.
• Lesson on orphan drugs for rare diseases for FH Europe ambassadors.
• Upcoming events you shouldn’t miss.

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