Heart Beat News – January 2022

In the January edition of FH Europe’s Heart Beat newsletter you’ll find the following:

• Information on our dedicated Policy Advisory Committee tasked with advocating for implementation of FH child screening across Europe.
• Insights on how we are working with people living with Lp(a) and medical experts to develop brochures and website content for patients.
• A chance to join our team with the addition of an office manager and newsletter editor.
• News about experts in Ireland collaborating with FH Europe to make a submission to the Irish Department of Health for a new FH screening programme.
• In France, an Open Letter was posted to the President of France calling for action in detecting inherited high cholesterol in children and preventing cardiovascular diseases.
• Europe is one step closer to having a new treatment option to treat the ultra-rare inherited form of high cholesterol.
• Information about how FH Europe will raise awareness of inherited lipid conditions through next month’s Rare Disease Day 2022.
• The World Heart Federation’s new one-stop platform for information on cardiovascular conditions and risk factors, collating data from a diverse set of international sources.
• Information about applying to attend the eleventh European Conference on Rare Diseases and Orphan Products (ECRD) this summer.

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