Heart Beat News – January 2023
In the January 2023 edition of FH Europe’s Heart Beat newsletter you’ll find news of the following:
- Chief Executive’s message for 2023
- The legacy of the Czech EU Presidency
- Our 31th network memeber – Action FCS joins the network
- Event report: First webinar dedicated to FCS
- Rare disease Day coming up
- Living with HoFH – a rare disease Patient Story in French
- The expansion of Diagnoza FH that will now be known as the Czech Alliance for Cardiovascular Diseases (CAKO)
- An active beginning of the year of SZÍVSN Heartily Hungary
- Advancing a Prevention Agenda for Cardiovascular Care in Ireland
- Launch of the Heart Failure (HF) Patient & Caregiver Charter in Poland
- Polish Government Launches National Cardiovascular Health Plan
- Launch of an E-learning event planning tool for under-resourced associations from EURORDIS
- Watch the recording of the Empower Webinar – How Patients Can Advocate for Themselves with Clinicians
- The Global Heart Hub Cholesterol Action Plan: Building successful alliances
- Amryt Pharma to be acquired by Chiesi Farmaceutici S.P.A
- All the events you shouldn’t miss
FH Europe is supported by an educational grant from Amgen Limited, Sanofi, Regeneron, Akcea Therapeutics Inc. and Amryt
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