Heart Beat News – April 2023
Read the April 2023 edition of FH Europe’s Heart Beat newsletter to stay up to date with the latest news and events:
- – Introducing Emma and Elsie, new FH Europe team members
- Free registration until May 15 for the upcoming EAS Congress
- Take a survey to influence new treatments: HoFH lived experience survey
- FH Europe presented at the 2023 ESC Preventive Cardiology annual congress
- Listen to the stories of our HoFH Patient ambassadors, Chyrel and Michelle, who will be speaking at the WHF Rare Diseases Forum.
- FHChol Austria, which recently became part of the newly founded Cholesterinallianz, will provide free cholesterol and Lp(a) testing at the Austria Health Forum on 12 May
- Progress in the fight to adopt FH paediatric screening in France
- VRONI Germany: FH paediatric screening program receives national recognition
- Dutch LEEFH presents a new video: FH explained in an understandable and accessible way
- In Norway, genetic screening for FH hits a major milestone of 10.000 diagnosed patients
- Celebrating the 25th anniversary of the Spanish FH Foundation
- Recent study on Elevated Lp(a) and HoFH in children
- Article on the evaluation of Body Mass Index, overweight and obesity status, and cholesterol levels in younger children
- EURODIS Black Pearl Awards nominations open
- World Heart Summit 2023 is coming up
- European Patients’ Forum celebrates its 20th anniversary
- Inviting Young Patient Advocates to apply to attend training in Riga
- All the events you shouldn’t miss
FH Europe is supported by an educational grant from Amgen Limited, Sanofi, Regeneron, Akcea Therapeutics Inc. and Amryt
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